Wanted: A Kidney for Manjinder Singh

Good morning!
This is a post of another person looking for a donor. Please share!
My name is Manjinder Singh and I was diagnosed with kidney failure in 2013. The exact disease that I have is known as IgA Nephropathy. I had always lived a simple and clean life, so to have heard from the doctor’s mouth that I have kidney disease was surprising to say the least. My initial response was that of disbelief and quite frankly I thought someone surely must have made a mistake in the diagnosis process. I thought to myself how could someone who has never drank alcohol, smoked, or done any other drugs be hit with kidney failure at age 23. Surely this was a bad dream and I would wake up from it.
Unfortunately this was reality and for the next several years I would live with the idea that I will one day end up on dialysis and need a transplant. That day arrived in June of 2016. I received a call from my nephrologist telling me that I need to go to ER right away. I was in end stage renal failure and would need dialysis to sustain my life. As one can imagine it was a traumatic moment in my life. Here I was sitting in a hospital waiting to be dialyzed for the very first time thinking in my mind that I was supposed to be the one taking care of patients not becoming a patient myself. You see, I had high aspirations of becoming a physician. I had finished my Bachelor’s degree, taken the necessary tests and obtained the proper experience to enable myself to apply for medical school.
Unfortunately it wasn’t meant to be as my condition wouldn’t allow me to handle the ever so demanding coursework of medical school. Though this was a hard pill to swallow, I stayed positive and moved forward. Dialysis became part of my life, in fact it became the reason I have a life. I currently attend Hemo- dialysis three days a week for 3.5 hours each treatment. I have had significant changes to my life ever since I started dialysis. For example, I am always on a fluid restriction, which is absolutely horrible for someone who loved drinking water and juice. Besides controlling fluid intake, I have to always watch what I eat as well. Avoiding foods high in certain nutrients is key to sustaining longevity while on dialysis. Besides the drinking and eating component, your overall lifestyle changes as well. I haven’t been able to work out since starting dialysis, nor do I have the same energy level as before.
 
Being in kidney failure has not just impacted my life, but it has also drastically impacted the lives of my family members. They have struggled right along with me for that past several years now. My family has left no stone unturned in an effort to find a solution to my problem. My mother in particular has been an angel for me through this process. She takes care of me on a daily basis, and continues to believe that her son will be healthy and thriving very soon. My brother and sister-in-law have done everything possible to help get through this difficult period in my life. My father, who is an exceptionally hardworking individual, makes sure that I stay positive even when things get really difficult. I know my reality now more than ever before. I am in end stage renal failure and I have accepted that truth. My only solution to have a normal life again is to receive a kidney transplant.
I am highly convinced that upon receiving a kidney I will have a completely different outlook on life, in fact I already do. A second chance at life will mean everything to me and my family. A chance to live out my dreams again, a chance to attend medical school and most important a chance to help others in need. My inspiration remains the same as before. I have always sought ways of helping those that are less fortunate. Community service is a huge concept in my religion and it is something that I value very much. If I am given a second chance at life, I will make sure it doesn’t go to waste, but rather I become an example of someone who did the right thing.
 
If after reading my brief story you feel like having yourself tested to be a potential donor, please contact the following transplant center and/or visit the following link to fill out a kidney donor questionnaire using my DOB of 10/07/1988 and full name of Manjinder Singh. I thank you for reading about my struggle and possibly considering to be a donor.
My Transplant center participates in paired donor exchanges, so any blood type will work, however, blood types A+\- and O+\- are most likely to match.
California Pacific Medical Center (CPMC): 415-600-1700
Thank you for reading and thank you in advance for sharing my story.
Be Inspired-Give Life!
Nikki

April is National Donate Life Month!

Happy Tuesday everyone! I hope everyone had a lovely Easter weekend (for those who celebrate it) or Passover (for those who celebrate that). We had a nice family dinner and relaxed the rest of the day. It’s a nice way to go into the weekend.

However, the new week begins, and it’s back to normal. But this week is the start of an important month…

National Donate Life Month (NDLM)!

During April, there are many local, regional, and national events that encourage Americans to sign up as organ donors and to celebrate previous organ donors.

Donate Life America has released some statistics about organ donation:

  • In 2016, there were more than 33,600 transplants (from 9,900 deceased and 5,900 living donors).
  • More than 116,000 men, women, and children are waiting for organ transplants.
  • About 58% of the patients waiting for transplants are minorities.
  • Another person is added to the national organ transplant waiting list every 10 minutes.
  • 8,000 people die each year (22 people each day — almost one person each hour) because an organ is not donated in time.

Most people who are waiting for an organ transplant need kidneys (80%).

Donating doesn’t only mean organs — there’s also a need for donated tissue.

  • Each year, there are approximately 30,000 tissue donors and more than 1.75 million tissue transplants; the surgical need for donated tissue is steadily rising.
  • A single tissue donor can help more than 75 people.
  • 48,000 patients have their sight restored through corneal transplants each year. As a resident in ophthalmology, I have participated in this process both in the operating room and in the discussions with the family.

Not including living donors, more than 138 million people, approximately 56% of the U.S. adult population, have registered to be organ, eye and tissue donors.

To register as an organ donor, visit RegisterMe.org. To learn more about organ donation, visit Donate Life America.

I have gathered a few stories to start publicizing on the site but it’s not too late.if anyone else wants to tell their story – as a donor, family member of a deceased donor, or recipient. Please contact me if you want to write about your experience.  I am looking forward to hearing from you.

For more about my journey after kidney transplantation, you can visit my blog Life: The Reboot .

Be Inspired – Give Life!

Dominique

It’s My 3-Month Transplantiversary!

National Kidney MonthIt’s been three months since my kidney transplant.  The doctors have just spread out my doctor’s appointments and blood tests – I was getting my labs done every week and seeing the doctor every 2 weeks. Now, the labs are every 2 weeks and I see the doctor every month.  Woo-hoo! Things continue to move in a positive direction.

As my health continues to improve, I am still looking for ways to get the word out about the new focus of this blog. I boosted the last post – it was cool that I heard from some people that I hadn’t been in contact with for years. For all the concerns with Facebook right now, there is one thing that it does very well – connecting you with long-lost friends. They all sent kind words and encouragement – one point for the book of Faces, right?

But more importantly, the month of March is National Kidney Month, and March 8th was World Kidney Day. This year, the theme for World Kidney Day was “Kidneys & Women’s Health: Include, Value, Empower”.   In many ways, women are different so it’s great that there has been more focus on managing chronic kidney disease (CKD) and other kidney diseases in women. Women also tend to donate a kidney more frequently but are less likely to receive transplants . There have been multiple events around the country (and world) providing education about kidney health in a variety of formats, such as lectures and presentations, Congressional dinners, and even cooking classes!

The month’s not over yet – you can check sites like the National Kidney Foundation to look for events in your area.

I am still looking for stories from donors, recipients, and people in need of a transplant (email: akidneyfornikki@gmail.com).  And as I noted in an earlier post, I am also starting a blog about my journey after transplant. It’s called Life: The Reboot  – check it out, join in – we all could use a refresh in our lives!

Remember, more eyes, more exposure for those people who need an organ!

Be inspired – Give Life!

Dominique

What’s Next?

It’s been 10 weeks since my Kidney Transplant!

I feel good – I’m working on getting my strength back.  It is a slow process, but I can tell I’m moving in the right direction day by day!

Time to look forward…

As I noted in my last post, I have several things I want to do as I reclaim my life. One is to do what I can to help people who were in my situation. I love my Wanted: A Kidney for Nikki blog because it introduced me to many of you who took the time and energy to respond, to write a note, pray for me and my family, or even call in to get more information about being tested as a potential donor.  I’m going to keep the blog but repurpose it a bit…

I want to continue to help get information about organ donation out – by publishing stories from:

  • Other recipients,
  • Donors, and
  • People looking for a donor.

I will also have posts about kidney health and organ donation as well.

It’s important that more people hear about organ donation and how it changes lives. I also want to give people who are looking for a donor one other avenue to get more eyes on their stories.

So, I would like to ask for your help – again – in sharing this post to hopefully start the ball rolling….

Share this post with your friends. I’m going to reach out to some people who mentioned in the comments that they donated or received a transplant, but I could really use your help getting the word out.

I have set up an email account for this purpose: akidneyfornikki@gmail.com

I am so grateful for my new life – hopefully, this blog will be helpful to someone else in starting theirs.

Be Inspired — Give Life!

Dominique

A Merry Christmas and a Happy New Year with My New Kidney

We found her.  A HERO!

I just got out of the hospital after my KIDNEY TRANSPLANT!

It was the best holiday gift ever.  We found my living kidney donor through this FACEBOOK page and blog.

It’s amazing – I feel so blessed – that she stopped and read about me, called in, and followed the doctors’ multiple requests to get ready for the surgery. I can’t emphasize how much this means to me and my family – or how much she herself means to me. I don’t think I can thank her enough!

After the surgery, my kidney donor checked out of the hospital the following day.

We have become friends and plan to go to the beach together soon!

I want to thank everyone who read this blog, left encouraging comments, spread the word, or called in to ask about being tested. Thank you from the bottom of my heart!

Now that I have had the transplant, it’s not over…

I will need to recover and start getting back to my new normal.  It has been tough to exercise while on dialysis.

Now that I am 50 years old, I want to get healthy again – exercising, eating better, and fully participating in my life. If I can do it, anyone can. I am going to chronicle my journey and I invite you to follow along – and participate!

Also, I want to be a voice for people with kidney failure and transplants. As a doctor, having been on both sides of the situation, I have insights that might help both the patient and medical communities. I am still working on my vision but will definitely keep you up to date through this page.

Here’s to a happy and healthier 2018.